Individuals and parents of children with Klinefelter Syndrome are often isolated from their peers, while parents managing day to day concerns with their children that range from coping with a diagnosis to their child transitioning to adulthood.
We aim to to provide everyone with a network of online communications and social networks that can provide everyone with a way to reach out to others at a time that is convenient for them.
Our social media goals are for everyone to share information about helpful resources or provide supportive words of encouragement for online community members. Parents can share if they have had a tough day with their child or if their child did something they are extremely proud of that others will appreciate and understand.
We also aim to provide resources such as free seminars, catch-up days, conferences, AGM meetings or even recommending specialists among people online.
Diversity without inclusion calls out our differences, increasing exclusion rather than inclusion. Diversity & Inclusion are two faces of the same coin. Including others is to accept them for who they are, and not who we want them to be.
1 in 70 have an Autism diagnosis;
In the USA alone, 1 in every 691 babies are born with Down Syndrome
..... yet 1 in 500 are born with a Klinefelters syndrome diagnosis. Yet no one has heard of it.
We need action.
We need change.